The Creation of an Organizational Model of Long-term Rehabilitation for Children with Cerebral Palsy

Cerebral palsy is a significant medical and social problem and an economic burden for families of children with cerebral palsy, the health care system and the economy as a whole, as leads to serious limitations on the life of the child, as a result of which such children require constant rehabilitation support. The aim of this work was to create an organizational model of long-term rehabilitation care for children with a diagnosis of cerebral palsy. To achieve the goal of the study, 20 in-depth interviews with industry experts were conducted and 112 parents of children diagnosed with cerebral palsy from 17 regions of the Russian Federation were interviewed. In the course of the work, the research objectives were fully implemented: the international experience of organizing rehabilitation support for children with cerebral palsy was analyzed, the regulatory legal regulation of medical and social rehabilitation of children with cerebral palsy in the Russian Federation, as well as the experience of medical and social institutions in organizing rehabilitation assistance for children with Cerebral palsy in the Russian Federation. Based on the results of our research, we formulated ways to solve the identified problems of medical rehabilitation of children with cerebral palsy in the Russian Federation, identified the prospects for organizing long-term rehabilitation care for children with cerebral palsy, and developed detailed recommendations for solving this problem and described an approximate organizational model for creating long-term rehabilitation care for children with cerebral palsy at the level of the region of the Russian Federation.